NRAS Logo
Logged in as: pedro-pmc Search | Moderate | Active Topics | My Profile | Members | Logout

5 Pages <12345>
New Topic Post Reply
What do you tell Options
MaryLewis
#41 Posted : Wednesday, December 09, 2009 2:59:47 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/3/2009
Posts: 585
Hi John
I do not know you so I just said what I thought about you being smug no offence meant there
when you stop and think about the forum yes it is a private club it is for people and there families who live with RA and you do have to be careful with what you say
when you write some-thing it sounds different than when you are saying it
do you see what I am trying to say
I know this is all new to you and you want to find out every-thing about RA to be honest I have had it for 14 years and I am still finding out different things
as I have said what you write is not always the way you would say it
hope you know what I mean
take care
Mary L
Tabbycat
#42 Posted : Wednesday, December 09, 2009 4:02:46 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/3/2009
Posts: 351
John-H wrote:
Hi Dorat

Of course there is a lot more to it than that. In many ways those who have been with their partners pre RA are in a better position to cope. .



And there are those who have had RA from childhood. I believe it's those people who know how to cope best, because they can't remember life without it and have had many years to get used to it (38 for me).

My husband's not the emotional sort and I wouldn't want him blubbering over me, life goes on. I wouldn't mind him doing a bit more around the home though! BigGrin
Carol
Tabbycat
#43 Posted : Wednesday, December 09, 2009 4:18:55 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/3/2009
Posts: 351
John-H wrote:
It has become quite obvious to me (as an outsider ie non-sufferer) that this forum is very much a closed shop made up of contributors who have the same mind set.

As such anyone who asks a question or who has an alternative view point to the masses is scorned upon. Any comment that is is made that rocks the boat (however gently) is deemed offensive by some.

I am used to contributing on open forums where debate is encouraged. Sadly this is not the case on this fourm. Any further posts from myself whould therefore be futile.

I have therefore decided to leave the forum, continue with my voluntary work with the NRAS whenever deemed necessary and let you all return to your safe seclusion.

John



As far as I see it John, some members have been critical of your OPINION, not you, so don't understand why you feel you need to quit this forum. As a former police officer, I would have thought you well adept at dealing with all sorts of people and opinions?

Best wishes

Carol
Carol
John-H
#44 Posted : Wednesday, December 09, 2009 4:27:54 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 56
Hi Tabbycat

You are of course quite right.
RedDog
#45 Posted : Wednesday, December 09, 2009 5:30:04 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 312
Location: Surrey
Tabbycat wrote:
As a former police officer, I would have thought you well adept at dealing with all sorts of people and opinions?



Maybe he didn't do the course!
A friend is someone who knows all about you but loves you anyway!
Calmwater22
#46 Posted : Wednesday, December 09, 2009 8:56:27 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,740
Hi Mrs Woman

Thankyou
Yes i agree not letting our anxities pass onto partners etc,
For me i have alot conditons now not just rA,so in all forums are my way saying how thing are.
prayer is my biggest help.
know this isnt so for all.
thanks for your help on this subject,Im also finding there are certain members my faimly who only care about themselves.
so i dont bother discussing naything with them only ends in grief.
as stres something affects us all im sure.
i have to now limit my stress,and found i have to not give full answers to m in law lets say or all i get id abosue,stres,and talking behind my back.
this in past ahs made me more ill.
so im leanrign to disclsoe to and who not.

not easy by far.

lv inky07
cuddly cats make my world seem so much more fun
RedDog
#47 Posted : Wednesday, December 09, 2009 9:17:23 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 312
Location: Surrey
Tabbycat wrote:
........ I wouldn't mind him doing a bit more around the home though! BigGrin



Yes, and you've told me what " bit " you wouldn't mind him doing more of!!
A friend is someone who knows all about you but loves you anyway!
Tabbycat
#48 Posted : Thursday, December 10, 2009 8:12:11 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/3/2009
Posts: 351
LOL LOL LOL
Carol
John-H
#49 Posted : Thursday, December 10, 2009 8:55:59 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 56
If my manner of writing resulted in any misunderstandings then I apologise. It was never my intention to diaparage anyones beliefs.

If I gave the wrong impression and upset anyone then I also apologise.
JulieM
#50 Posted : Thursday, December 10, 2009 3:04:02 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 1,524
Location: W. Yorkshire
Only just caught up with this thread and it seems to have got a bit out of hand.
Each of us has our ways of coping and if works then go for it.
Let's not fall out, let's just be happy that people DO have their own coping mechanisms.
I think having RA and being the partner of someone with RA can frazzle everyone concerned so it's not surpising that things can get a bit heated at times.
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
Jan
#51 Posted : Thursday, December 10, 2009 5:02:12 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 259
well said Julie,
Jan x
MaryLewis
#52 Posted : Thursday, December 10, 2009 5:44:18 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/3/2009
Posts: 585
that is one thing I would not do
fall out with any-one I thought this was just a discussion I have had my say I know not every-one agrees with it but I am just going to carry on as normal
I hope none of you thought I was rowing with you
Mary L
jeanb
#53 Posted : Thursday, December 10, 2009 7:15:08 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 3,006
Location: Timperley
Course we didn't. You (and everyone) is entitled to their opinion - Julie is right - RA DOES frazzle us all out!!
John-H
#54 Posted : Thursday, December 10, 2009 8:38:41 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 56
I would like to think that we are all now friends again. I hope I am right. My last intention was to make waves.
Calmwater22
#55 Posted : Thursday, December 10, 2009 8:53:52 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,740
Yes if its not the Medication that frazzles us,its RA or whatever else we may have.
bearing in mind lot of us suffer from more than just Ra.


ps thanks replies re what to tell family,friends re about RA how affects us.
a sibling of mine thinks i ilterate casue my RA fingers hit all wrong keys.
despite spell checker which i find anoying to say least.

inky07
cuddly cats make my world seem so much more fun
volfram
#56 Posted : Thursday, December 10, 2009 11:06:10 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/5/2009
Posts: 119
Location: warrington
Hi John
Do keep posting as i find it quite interesting from all the posts i read how all of us have different coping stratergies & i'm sure someone has already said what does for one does'nt for another. i think you said just before it started to get a little heated you were feeling emotional, and thats ok. we are all allowed to do and to be able to come on here and voice different views and feelings. (can't quite put into words what i want to say). But i generally feel that we all like to support each other in what ever way we can and respect each others beliefs or non whatever.
lizziemouse
#57 Posted : Friday, December 11, 2009 7:15:42 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 872
i agree, keep posting x
I also agree with inky's wise words about stress. My symptoms first appeared during the worst stressful period of my life and i personally feel sure stress is directly linked to development of RA and other illnesses. Here's to a stress free forum ThumpUp
Lets stick together, have a good ol' rant about things but never each other, lots of people with and without RA can read everything posted, & maybe newly diagnosed or family feeling anxious and thats what i felt most concerned about....
Think things are better now, maybe its the Christmas spirit!
Take care all x
MrsWoman
#58 Posted : Monday, December 28, 2009 9:52:17 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 331
Location: South London
I am in agreement with Lizzie that stress is a trigger for RA as I also went through a prolonged period of stress when the symptoms of RA appeared.

I havent told many people about the RA and I didnt want to tell my family as I wanted to live a normal life as possible. however I would tell them if it could prevent it happening for them. Is there a way of preventing it. On the other hand if there isnt then I wouldnt want to cause them any unnecessary worry about having it themselves. So its a bit of a weigh off between teh two. Any thoughts?


Cool
Blue Star
#59 Posted : Monday, December 28, 2009 10:42:17 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 561
Totally agree with the stress being part of how we develop Ra and other illnesses, i was under severe stress at the age of 20 and had lost a lot of weight around the time i got ill , i am convinced it triggered some thing in my immune system to make me get Ra. My father died suddenly 7 years ago at 56 and thats when i started getting the lupus symptoms again severe stress..... Now when my sisters are stressing out i tell them try to relax , talk , or go to the doctors as i wish i had and i might not have developed these illnesses

Sophie x
RedDog
#60 Posted : Monday, December 28, 2009 11:20:19 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 312
Location: Surrey
Blue Star wrote:
Totally agree with the stress being part of how we develop Ra and other illnesses, i was under severe stress at the age of 20 and had lost a lot of weight around the time i got ill , i am convinced it triggered some thing in my immune system to make me get Ra.


I think you are probably right Sophie! In my case I was injured quite badly at work and developed RA shortly after. I also developed Type 1 Diabetes after being treated with steroids. In both cases the Criminal Injuries Compensation Board accepted that the injury had triggered the RA and the steroids had also brought on the diabetes!
A friend is someone who knows all about you but loves you anyway!
Users browsing this topic
5 Pages <12345>
New Topic Post Reply
Forum Jump  
You can post new topics in this forum.
You can reply to topics in this forum.
You cannot delete your posts in this forum.
You can edit your posts in this forum.
You cannot create polls in this forum.
You cannot vote in polls in this forum.

SoClean Theme By Jaben Cargman (Tiny Gecko)
Powered by YAF 1.9.3 | YAF © 2003-2009, Yet Another Forum.NET
This page was generated in 0.264 seconds.